Cindie Haakenson is seen through a window of her home as the family farm is reflected before her on May 21 in Willow City, N.D. Despite a preference to remain at home, Cindie's husband, Sherwood Haakenson, needed to move to a 24-hour long-term care center.

Cindie Haakenson is seen by way of a window of her house because the household farm is mirrored earlier than her on Might 21 in Willow Metropolis, N.D. Regardless of a choice to stay at house, Cindie’s husband, Sherwood Haakenson, wanted to maneuver to a 24-hour long-term care middle.

Tim Evans/for NPR


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Tim Evans/for NPR

RUGBY, N.D. — Cindie Haakenson was relieved when a room opened up on the Coronary heart of America long-term care middle this previous spring.

Her 74-year-old husband, Sherwood, had been affected by a number of fainting episodes in current months attributable to points along with his coronary heart and kidney. Lastly, he might obtain the 24-hour supervision he desperately wanted.

However quickly a brand new nervousness crept in: tips on how to afford it.

“We’ve received sufficient tucked away to maintain him for a few 12 months. After that, I’m unsure,” Cindie mentioned. “We’ve received farmland that we personal we might promote, however it’s like giving freely a part of your legacy.”

Rain clouds gather near the Haakenson family farm in Willow City, N.D., on May 21. Most of the small cattle and wheat farm has been in Sherwood Haakenson’s family for over 130 years.

Rain clouds collect close to the Haakenson household farm in Willow Metropolis, N.D., on Might 21. A lot of the small cattle and wheat farm has been in Sherwood Haakenson’s household for over 130 years.

Tim Evans/for NPR


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Tim Evans/for NPR

The Haakensons personal about 2,600 acres in North Dakota’s Willow Metropolis space. A lot of the small cattle and wheat farm has been in Sherwood’s household for over 130 years. It survived brutal winters and the farm disaster of the Eighties. Now, the couple confronted a state of affairs many growing old household farmers concern: being pressured to promote or break up the farm to pay for long-term care.

It was a gut-wrenching place to be in, however woefully acquainted. Years earlier, Cindie watched as her dad and mom’ well being points almost value them their farm.

Sherwood Haakenson sits in his room at the Heart of America Medical Center long-term care facility in Rugby, N.D., on May 14.

Sherwood Haakenson sits in his room on the Coronary heart of America Medical Heart long-term care facility in Rugby, N.D., on Might 14.

Tim Evans/for NPR


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Tim Evans/for NPR

“I’ve identified without end that that is the way in which it’s,” Cindie mentioned. “And also you simply form of hope that you just don’t should face it sooner or later.”

A 3rd of People 65 and older will want a 12 months of nursing house care of their lifetime, in response to the Division of Well being and Human Companies. A semiprivate room immediately can value some $8,700 per 30 days — and it’s typically not coated by Medicare. Lengthy-term care insurance coverage exists, however it’s deeply unpopular with older People. So, many seniors dip into their retirement or financial savings to get the care they want, whereas others apply for Medicaid, which has its personal challenges.

The alternatives are particularly daunting for small farmers, in response to Robert Moore, an legal professional and researcher at Ohio State College’s Agricultural & Useful resource Regulation Program.

“I inform farmers on a regular basis: There are not any straightforward options to long-term care planning,” he mentioned.

Moore referred to as long-term care wants one of many greatest threats immediately to small household farms. He mentioned farmers go to nice lengths and years of planning to guard their land of their golden years. However with hovering prices and an growing old boomer inhabitants, he expects the issue to solely develop.

Leaving the farm is not straightforward, even when long-term care turns into a necessity

A person makes their way into the Heart of America Medical Center in Rugby, ND on May 21, 2024. The current critical access hospital, which is 120 years old and inefficiently designed, will be replaced with a modern, $62 million facility later this year.

An individual makes their means into the Coronary heart of America Medical Heart in Rugby, N.D., on Might 21. The price of long-term care will be difficult for some small household farmers to afford, particularly if their property are tied up of their farm and gear.

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Sherwood’s well being took a flip for the more serious in October, when he collapsed at house and was airlifted from the native hospital to an emergency room in Fargo, N.D., some 200 miles away. Over the course of 4 months, he was taken to the ER six instances, in response to Cindie.

Every time felt like an in depth name. It’s not straightforward for EMT crews to seek out the couple’s house — particularly at evening. It was additionally unattainable for Cindie, who’s a foot shorter than her husband, to attempt to lug him to the hospital herself.

In March, it was clear Sherwood wanted to be nearer to medical care within the chance he fainted once more.

Though the nursing house was only a 20-minute drive from their house, it was arduous for him to settle in. The Haakensons by no means did effectively removed from house. They most well-liked the quiet, and though they’d traveled throughout the nation, their favourite views got here from their household room window.

Sherwood and Cindie Haakenson sit in Sherwood’s room at the Heart of America Medical Center long-term care facility in Rugby, N.D.

Sherwood and Cindie Haakenson sit in Sherwood’s room on the Coronary heart of America Medical Heart long-term care facility in Rugby, N.D.

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Tim Evans/for NPR

Sherwood had lived and labored at his farm for the previous 5 a long time. It was the bottom his great-great-grandfather homesteaded.

“In June of 1890, that’s after they received their first wind up there by Willow Metropolis. And I nonetheless have it,” Sherwood mentioned again in April. 

His household was amongst a whole lot of Norwegian immigrants who helped form Willow Metropolis. By the point he was born, the city had almost 600 residents. Now, it is simply shy of 150 individuals and the grocery retailer, the highschool, and two bars he as soon as loved are all closed.

“Everybody says it’s a dying little group,” he mentioned.

Why long-term care prices are a menace to farmers

Cindie Haakenson drives an ATV out of her garage in Willow City, N.D., on May 21.

Cindie Haakenson drives an ATV out of her storage in Willow Metropolis, N.D., on Might 21.

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Tim Evans/for NPR

Small household farmers are sometimes “land wealthy, money poor,” which means their property are tied up of their farm and gear, in response to Moore from Ohio State College.

“Most farmers reside very frugally,” he mentioned. “They do not have dwelling bills of $100,000 a 12 months. So after they get a $100,000 invoice from the nursing house yearly, that is simply not of their price range.”

There are about 1.9 million farms in the USA — 40% of that are owned by farmers 65 and older. Regardless of a development of consolidation, as of 2022, about three-quarters of farms earned $50,000 or much less in gross sales a 12 months, in response to the Division of Agriculture.

The common farmer can afford a 12 months or two of long-term care through the use of their financial savings, or by promoting their crops, livestock and equipment, Moore added. The state of affairs can grow to be dire when an growing old farmer wants greater than the common three years of care.

“What could preserve farmers up at evening is the chance that they are often in a nursing house for a few years and deplete accessible assets and jeopardize the household farm operation for themselves and future generations,” Moore mentioned.

Cindie Haakenson drives an ATV between her family farm and a neighboring property in Willow City, N.D. on May 21.

Cindie Haakenson drives an ATV between her household farm and a neighboring property in Willow Metropolis, N.D., on Might 21.

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Tim Evans/for NPR

The Haakensons bought their instruments and equipment years in the past. The one vital factor left to promote, in response to Cindie, was their Chevy pickup truck, which might have helped pay for 2 months of care.

Ray German, the lead legal professional at German Regulation in Grand Forks, N.D., mentioned that in his expertise, farmers with land that’s price lower than $1 million are on the best threat of dropping their whole farm over long-term care prices.

“They’re very involved they might lose the entire farm. They may lose all the pieces,” German mentioned.

Medicaid is way from an answer

Registered nurse Susan Eback checks in on Sherwood Haakenson in his room at the Heart of America Medical Center in Rugby, N.D., on May 14. Haakenson had been suffering from multiple fainting episodes in recent months.

Registered nurse Susan Eback checks in on Sherwood Haakenson in his room on the Coronary heart of America Medical Heart in Rugby, N.D., on Might 14. Haakenson had been affected by a number of fainting episodes in current months.

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Tim Evans/for NPR

Lengthy-term care insurance coverage is rife with its personal issues, from complicated underwriting to rising premiums. German, who has labored with hundreds of older farmers to assist protect their estates in North Dakota and Minnesota, mentioned solely a tiny fraction of his shoppers use it.

“It is costly, and lots of instances, you have to bounce by way of so many hoops relying on the coverage,” he mentioned.

Brief-term care insurance policies are a more moderen various to long-term care insurance coverage, mentioned Lance Boyer, a gross sales director at Farmers Union Insurance coverage in North Dakota. However their advantages normally final not more than a 12 months.

“They’re actually inexpensive and underwriting is fairly easy,” he mentioned. However “it is but to be decided how impactful they’re out there as a result of they’re nonetheless so new.”

An alternative choice is Medicaid, which is the largest single payer for long-term care within the U.S. In North Dakota, whereas this system utterly covers nursing house prices, enrollees can solely have just a few thousand {dollars} to their title. They will preserve some more money and their house and automobile if it is of their partner’s title, however typically no different property. That’s particularly troubling for farmers, whose livelihood and households are sometimes intertwined with their land.

The Haakensons made arrangements to transfer their land to their son and daughter, who plan to continue their legacy of farming.

The Haakensons made preparations to switch their land to their son and daughter, who plan to proceed their legacy of farming.

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Tim Evans/for NPR

“Proudly owning farmland, notably that is been within the household for generations, may be very completely different than proudly owning a inventory portfolio which will have to be liquidated,” Moore mentioned. “There’s normally household heritage concerned, and persevering with that legacy is basically vital for lots of farmers.”

A method farmers work across the Medicaid restrictions is to switch their farm into an irrevocable belief and title their kids as beneficiaries.

Even when farmers qualify for Medicaid, it could actually nonetheless take 5 years earlier than Medicaid can pay for long-term care. That’s as a result of in most states, Medicaid appears to be like to see if any improper monetary transactions have been made within the 5 years main as much as searching for help. The requirement is named a “look-back interval.”

Cindie made preparations to switch their farmland to their son and daughter three years in the past. On the time, she thought she was being proactive — believing that she could be the one needing long-term care sooner or later. However as a result of the Haakensons have been inside Medicaid’s five-year look-back interval, they have been unable to obtain authorities help for Sherwood’s care.

The Haakenson’s farm house in Willow City, ND on May 21, 2024.

The Haakensons’ farmhouse is pictured in Willow Metropolis, N.D., on Might 21.

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Tim Evans/for NPR

A grim stroke of destiny lets them preserve the farm within the household, for now

Boyer of Farmers Union Insurance coverage added that Medicaid shouldn’t be the end-all-be-all and there ought to be higher options for growing old farmers dealing with excessive long-term care prices.

Farming will not be straightforward or predictable, he mentioned. In a single day, a hailstorm can destroy months of labor invested in a crop. However farmers work the land anyway.

“They work their entire life, they pay their very own payments,” he mentioned. “Then, suddenly, after they want probably the most assist to get to the end line, they actually should wipe out all the pieces they’ve collected in life to get that assist.”

Cindie Haakenson is pictured at her home in Willow City, N.D. Sherwood Haakenson is pictured at the Heart of America Medical Center long-term care facility in Rugby, N.D. Sherwood died on June 17.

Cindie Haakenson is pictured at her house in Willow Metropolis, N.D. Sherwood Haakenson is pictured on the Coronary heart of America Medical Heart long-term care facility in Rugby, N.D. Sherwood died on June 17.

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Tim Evans/for NPR

On June 17, Sherwood died in his room on the long-term care middle.

Buddies close to and much, each previous and new, attended his service. Weeks later, Cindie mentioned fellow farmers continued to succeed in out to offer their condolences and share tales about her husband — lots of which have been new to her.

“I’ve mentioned it this fashion: He’s reduce a large swath over his years,” Cindie mentioned in July.

It was unusual for her to speak about Sherwood with out additionally worrying about him. For the higher a part of the final decade, Cindie’s life centered round being her husband’s caretaker and, extra lately, defending their farm. She felt some peace understanding she had achieved her half. However a little bit nervousness remained.

“If I can keep wholesome for 2 years, the land is secure,” she mentioned.

This story was supported by the Pulitzer Heart on Disaster Reporting.

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